What's New?
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What's New? |
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We Did It!!
Awareness Week 2000
Order your CF Awareness Merchandise!
E-Cards of Awareness
Awareness Events
Fundraisers
Ideas and Information
Join Us!
Help!!!!
Dear Friends:
Thanks to the dedication and determination of many of you, we were successful in establishing an official national awareness week for Cystic Fibrosis. We as CF patients, their family, friends, and caregivers aim to spread awareness of Cystic Fibrosis daily. No official recognition is needed to motivate us to help. However, we are so proud to have received official recognition from the United States Senate. Our voice was heard!!
You can view the resolution's progress from Senator Campbell's introduction through to the adoption of SR190. If you have not done so, please thank the sponsoring and co-sponsoring senators. We have a page set up where you can find the address, e-mail and webpage of your Senator.
Awareness Week 2000 is here!! Plan to do something during the week of October 15-21 to heighten CF Awareness. No matter how grand or how small, do your part to educate and enlighten those around you.
We are also offering beautiful enamel lapel pins with all of the proceeds going to the transplant fund of Barbi McGhee, a CF patient in Las Vegas, Nevada, who is now recuperating from a double lung tranplant. Barbi graciously allowed us to use her design for our patches, t-shirts and clings as well. A portion of the proceeds of those will also go to her transplant fund. You can also view the fundraising efforts of others awaiting transplants on our Tranplant Fundraiser page.
Marcia Monico has created some beautiful E-Cards for every occasion which also help to spread CF Awareness. The cards have a beautiful picture, a sentiment for the occasion and a link to the NCFAC site. Send them all year around. Be sure to especially take advantage during CF Awareness Week.
Join us, won't you? The NCFAC was begun by individuals with CF, their families and friends. Our goals as set forth in our Mission Statement are to increase awareness, educate and support.
Right now we are looking for interested and motivated people to join in our efforts. Their duties range from scouring the net and publications for information for our website to providing publicity for our cause. Won't you be a representative in the NCFAC for your state? Follow this link to read about our beginnings and see the names of others who are helping with our efforts . If you would like to join us, simply click the mail link at the bottom of this page and ask to be included. We will e-mail you back and find a spot for you that fits your abilities and available time.
If you have an idea for an awareness group that we don't have (for example, you would like to help write up educational materials or you are from another country and would like to bridge efforts toward a world wide awareness day) let the executive committee know of your idea and we'll work on getting it together.
We are a unique family bonded together in a way that none of us would choose. However, we can work together to make it easier for all of us, and hopefully rejoice together the day when CF becomes one of the "cured" diseases.
The interference of our personal lives resulting in our neglect of the NCFAC this past year proves that we need HELP!!!! We have some great ideas and some lofty goals. However, we can't do it alone. We need people who have a few hours a week to dedicate faithfully.
Here is a list of some of the things we need done right now. It will grow, as we do, in the future. If you can help us out and devote some time in any of these areas, please e-mail and let us know. The more help we have, the more we can accomplish.
Thank you all so much for your support. And please accept our apologies when occasionally we become so overwhelmed that we drop the ball.
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