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Links

 

 

General Cystic Fibrosis Links -

Cystic Fibrosis Foundation
CFRI - Non-profit organization raising funds for CF research and education; informative newsletter 3 x a year.
Boomer Esiason Page - Your online source for facts and information about Cystic Fibrosis & The Boomer Esiason Foundation.
Cystic Fibrosis Index of On-Line Resources
Cysticfibrosis.com - A site dedicated to making the lives of patients with cystic fibrosis easier on a day to day basis.
Welcome to Cystic Fibrosis 101 - This is *THE* original Cystic Fibrosis 101. This site has over 240 links to sites all related to Cystic Fibrosis.
Norma Kennedy Plourde's Cystic Fibrosis Page - A great page full of useful links!!
CF Care - The drug company Ortho-McNeil, makers of Pancrease, have an online source for people living with CF.


Support Group Pages -

Cystic-L Handbook - General facts, suggestions and real life stories of those subscribed to the Cystic-L mailing list online support group.


Infants -

Troubleshooting, Infants with CF - This site is designed to give some helpful tips to parents of infants diagnosed with Cystic Fibrosis (CF). The pages are here to give helpful tips to compliment the medical advice you get from your doctor.


Children -

Cystic Fibrosis for Kids Pages - This is a web page designed for Kids with CF. Very interactive and great for children trying to understand their disease.


Teens -

How to Handle Living With Cystic Fibrosis - Information for teenagers and young adults with cystic fibrosis.


Adults -

International Association of Cystic Fibrosis Adults (IACFA) - IACFA is a non profit organization, tries to improve the quality of life of adult persons with cystic fibrosis by addressing their problems and needs.


Medical/Scientific/Research -

Family Guide to Cystic Fibrosis Genetic Testing - Information and resources concerning education, testing and counseling.


Books -

Amazon Books - General online catalog for all books. Go to their homepage and do a search on "cystic fibrosis". This will bring up many books. A couple of favorites -

A Way of Life Cystic Fibrosis Nutrition Handbook and Cookbook - This 107-page handbook and cookbook is designed to help explain how CF affects the human body, and it explains the role diet plays in managing the disease. A great resource. It's not just recipes.
"Cystic Fibrosis : The Facts," by Ann Harris, Maurice Super - A great book for explaining the gentics behind CF to the layman.
"A Parent's Guide to Cystic Fibrosis", by Burton L. Shapiro, Ralph C. Heussner - A wonderful general book about CF.


 

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